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Title | Mila’s Miracle |
Description | Mila’s Miracle Foundation to Stop Batten is dedicated to finding a cure for Batten Disease. By funding groundbreaking gene therapy research, we hope to save Mila’s life and the lives of children like her diagnosed with the CLN7 variant of Batten |
Keywords | N/A |
WebSite | stopbatten.org |
Host IP | 198.49.23.145 |
Location | United States |
Site | Rank |
US$1,365
Last updated: 2023-05-15 10:30:03
stopbatten.org has Semrush global rank of 0. stopbatten.org has an estimated worth of US$ 1,365, based on its estimated Ads revenue. stopbatten.org receives approximately 157 unique visitors each day. Its web server is located in United States, with IP address 198.49.23.145. According to SiteAdvisor, stopbatten.org is safe to visit. |
Purchase/Sale Value | US$1,365 |
Daily Ads Revenue | US$1 |
Monthly Ads Revenue | US$37 |
Yearly Ads Revenue | US$453 |
Daily Unique Visitors | 10 |
Note: All traffic and earnings values are estimates. |
Host | Type | TTL | Data |
stopbatten.org. | A | 14400 | IP: 198.49.23.145 |
stopbatten.org. | NS | 14400 | NS Record: dns102.register.com. |
stopbatten.org. | NS | 14400 | NS Record: dns101.register.com. |
stopbatten.org. | MX | 14400 | MX Record: 10 alt3.aspmx.l.google.com. |
stopbatten.org. | MX | 14400 | MX Record: 10 alt4.aspmx.l.google.com. |
stopbatten.org. | MX | 14400 | MX Record: 5 alt1.aspmx.l.google.com. |
stopbatten.org. | MX | 14400 | MX Record: 10 aspmx.l.google.com. |
stopbatten.org. | MX | 14400 | MX Record: 5 alt2.aspmx.l.google.com. |
stopbatten.org. | TXT | 14400 | TXT Record: mandrill._domainkey.stopbatten.org |
stopbatten.org. | TXT | 14400 | TXT Record: google-site-verification=q-lOOo5GLWhk1jP5w6R_CTzCRgAZPf6020arI_M10tQ |
stopbatten.org. | TXT | 14400 | TXT Record: v=spf1 include:servers.mcsv.net include:spf.mandrillapp.com ?all |
stopbatten.org. | TXT | 14400 | TXT Record: google-site-verification=B_R1iD6zDJkfoIxzg8_Svhi_QKNVOcAmO01N_J4y5EU |
Mila’s Story Milasen Our Work Mila’s Tribe Media Blogs DONATE Mila’s Story Milasen Our Work Mila’s Tribe Media Blogs DONATE From Mila to Millions Mila fought hard against Batten disease, a rare fatal condition with no cure. Her story is now giving new hope to millions with genetic disease. Watch Mila’s Story In January, 2018, Mila became the first person in the world to receive a drug customized to just one person named Milasen . Despite losing a lot before beginning treatment, Mila was given an unprecedented second chance at life. Mila’s fight was not in time for her, but her story is now giving enormous hope to children across rare diseases that otherwise would have none. Julia Vitarello sits in her daughter Mila’s bedroom at home in Longmont, Colo. Mila died in February 2021 at age 10. RACHEL WOOLF FOR STAT STAT: A mother, shaped by tragedy, embarks on a mission to advance custom medicines READ THE ARTICLE Honoring Mila: We would be so grateful for your support in bringing bronze |
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Domain Name: STOPBATTEN.ORG Registry Domain ID: D402200000001015261-LROR Registrar WHOIS Server: whois.register.com Registrar URL: http://www.register.com Updated Date: 2021-11-20T10:45:09Z Creation Date: 2016-12-20T22:59:38Z Registry Expiry Date: 2022-12-20T22:59:38Z Registrar: Register.com, Inc. Registrar IANA ID: 9 Registrar Abuse Contact Email: domain.operations@web.com Registrar Abuse Contact Phone: +1.8777228662 Domain Status: clientTransferProhibited https://icann.org/epp#clientTransferProhibited Registrant State/Province: FL Registrant Country: US Name Server: DNS101.REGISTER.COM Name Server: DNS102.REGISTER.COM DNSSEC: unsigned URL of the ICANN Whois Inaccuracy Complaint Form https://www.icann.org/wicf/) >>> Last update of WHOIS database: 2021-12-30T16:50:56Z <<< |